Big Brother winner Reggie has shared her latest heartbreaking diagnosis in an emotional Instagram video.

Most Big Brother fans will know that Reggie has a degenerative eye condition called pigmentosa which rendered her legally blind. While the reality star still has partial vision, her condition is likely to deteriorate.

Now, Reggie has shared that her pigmentosa is actually a symptom of a disease called Usher’s sydrome which is commonly linked to loss of hearing, too.

“I had my genetic testing done thirteen years ago,” Reggie explained in an Instagram video.

“I’m just here about to see [my doctor], I’m going to find out today what my link is for my RP [eye disease].”

The 48-year-old then shared a post-diagnosis message; “It’s not what I wanted to hear… I just found out what my link is, it’s the worst thing that you could have and I have ashes syndrome. I’m going to deaf-blind.”

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A post shared by Regina Sorensen (@reggiebirdbb)

Reggie then shared a positive spin on her devastating diagnosis by thanking her fans and hinting that she may be sharing more of her life soon. “I just want to say thank you to all the people that do follow me and want to follow my journey, and there’s a lot more t come or Reggie so stay tuned,” she said.

Reggie made history when she was crowned champ back in July, as the first housemate in the world to win Big Brother twice, after her initial win in 2003.

However, the iconic housemate said that her most recent reality tv win wasn’t as exciting as her first back in 2003

“It has been weird this time, very different to the last time I won,” she told Herald Sun of being crowned the first two-time winner of Big Brother.

She added, “Reality TV was absolutely massive back in the day and it was all new back then and we didn’t have social (media) and stuff. This time, I wasn’t getting chased down by the street like I was back in 2003.”

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